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Paula's picture

Asthma care

There are a lot of people living with asthma and I hope that some good ideas will be shared at the Tackling Asthma Conference next week. It’s great that there will be a consumer voice in some of the main sessions.

As a person with asthma, or a carer of someone with asthma what would you recommend needs to be done to improve asthma care?

Tags: asthma

Comments

Troy Westley's picture
Hi Paula I was one of the speakers at the conference. One way to help people with asthma and their carers is with a new web-based and smartphone app called CareMonkey. CareMonkey makes it easy to share asthma action plans and other care instructions with all of the people you trust to care for a person with asthma (or any other condition). Asthma Australia's survey revealed only 18% of people know how to help a person if they are having an asthma attack...using CareMonkey you can share the asthma plan or the Asthma Australia first aid poster electronically with all carers, such as family, friends, teachers and sports coaches. This ensures all the people that might have a duty of care for the person are prepared to help and have access to asthma care instructions. CareMonkey also allows you to share the persons emergency contacts, medications, allergies, or any other care instructions with carers. CareMonkey is free at www.caremonkey.com and free to download for iphone users on the App Store (Android coming soon). Just letting you know I am the CEO of CareMonkey. We've partnered with Asthma Australia, Cystic Fibrosis Australia, Crohn's & Colitis Australia, Dieticians Association of Australia, The Butterfly Foundation, the Epilepsy Centre and Lung Foundation Australia. I hope you find CareMonkey useful, take care, Troy
CHF Team's picture
Hi Troy Thank you for your post. Care Monkey looks easy to use and quite straightforward to learn. It is something that consumers might find useful in managing chronic conditions or multiple medicines, particularly for those with children or who are carers. We have a few comments/questions which might be useful for consumers to know about before using the app. As I’m sure you’re aware, consumers are concerned about the security and privacy of their personal information. CHF has conducted consumer consultations on the Personally Controlled Electronic Health Record which showed that consumers have concerns about their data being stored outside of Australia, and who will have access that data. As Care Monkey looks like it allows you to input a significant amount of personal information, consumers would also need to be assured that the security framework on the web page as well as the app on their smartphone is robust – in case they access the website at a public terminal and forget to log off, or if they lose their phone or have it stolen. Consumers will also be interested in finding out what obligations are on the person receiving the information (such as a teacher, for example) to ensure that the information they receive is secure – particularly because the app allows you to enter detailed notes about a person. For example, would a teacher be entering into an agreement to keep the information they receive secure, and are they responsible if that information were to get out through a fault of theirs? Building on that, we understand that you have to agree to terms and conditions when creating your profile, but we're unsure if/how consent is obtained when you’re signing up other people and are looking to share their information. This may not be so much of an issue for a person’s own child and those with a legal guardian, but we would be interested to know whether permission is obtained from a third party to store and share their information, such as from a care recipient for example. Thanks again for sharing this information. It will be interesting to hear the views of other consumers on ways technology can help, and the sorts of things that are important to them.
Kiersten08's picture
We need long term control and prevention of asthma. I find that replacing animal protein as much as possible with plant protein, and eliminating milk products because milk and dairy products can aggravate asthma, can help. Proteins are also found in peas, broccoli, spinach, asparagus. We eat organically grown fruits and vegetables as much as possible and take daily exercise (not strenuous) like leisure walking.
Vince's picture
I am researching Care Monkey as a large number of schools in Victoria are using it. We are being put in position where we feel we 'have' to use it as we are getting phone calls and emails to input our details into Care Monkey. I have raised the same concerns listed above about security with the school i.e. guarantees on who is viewing data how is data cached and policies for deleting data etc. The teacher organising this said these concerns were raised by their own IT department. Did this forum receive any further information regain this? is there an overarching security policy that would apply to schools and other organisations? I think it is a really good tool but working in the IT industry and with SaaS software I understand the need of security.

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