Consumers making a difference

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Help improve Australian healthcare! By sharing your health experiences and ideas, you can help consumer advocates and consumer organisations work for change that improves things for you, patients, carers, families and communities. 

  • From Latest News's picture

    Consultation on a NSQHS Standards resource for community health services

    The Australian Commission on Safety and Quality in Healthcare is asking for feedback on a draft resource to help community health services using the National Safety and Quality Health Service ( NSQHS ) Standards. Information is available on their website at http://www.safetyandquality.gov.au/our-work/accreditation-and-the-nsqhs-standards/current-consultations/#Consultation-on-a-resource-for-community-health-services-applying-the- NSQHS -Standards The consultation will close on 24 July 2015.Read more
  • From Latest News's picture

    MS Melbourne Cycle: Carol's story

    Carol recently shared her story as part of her work for the MS Melbourne Cycle , which will take place on Sunday 19 April to raise funds for people living with multiple sclerosis ( MS ), the most common neurological condition in young adults. The story below is an excerpt from the promotional material for the event. Carol Cooke is a Paralympic Gold Medallist, a World Cycling Champion, 2013 Victorian Cyclist of the Year, an Order of Australia recipient – and she has multiple sclerosis. She was 36 when she visited her GP because she was experiencing disturbing balance problems and double vision...Read more
  • From Latest News's picture

    Croakey Blog: 'Measuring what matters: the consumer experience of health care'

    FYI - Here’s a blog from Jennifer Doggett about the importance of using consumer experience in health decision making, and highlighting CHF ’s call for the development and implementation of a tool to measure consumers’ experience of health care. http://blogs.crikey.com.au/croakey/2015/03/08/measuring-what-matters-the-consumer-experience-of-health-care/...Read more
  • CHF Team's picture

    When does medical confidentiality become unjustified secrecy?

    Medicine Australia’s proposed code of conduct has highlighted a tendency by members of the medical profession to avoid disclosing information that may be in their patient’s or the public’s interest. Medicine Australia ( MA ) has recently published its proposed code of conduct as part of its attempt to gain the authorisation of the Australian Competition and Consumer Commission ( ACCC ). Despite the ACCC ’s earlier direction for the new code to require the naming of clinicians who have received payments and other perks from drug companies, MA ’s proposed code has stopped short of this measure...Read more
  • Delia's picture

    Health, Technology, Startups

    Last night was the most successful yet of the Melbourne group Startup HealthTech - http://www.meetup.com/Startuphealthtech/ . There are now 575 members of this group, doctors, nurses, allied health professionals and software developers. Sydney also a similar group Health Tech Sydney - http://www.meetup.com/Health-Tech-Sydney/ . Many of the issues that patients raise, including poor use of technology compared to other sectors is raised at these groups. However there is no patent voices heard, which is a concern. Patients are the health systems best source of data. How long did you wait for...Read more
  • CHF Team's picture

    Improving GP Care Management Plans

    Do you have a care management plan with your GP ? The Consumers Health Forum of Australia ( CHF ) is working with NPS MedicineWise to understand how you use your care management plan. If you have a care management plan, CHF would like to hear from you. Specifically we would like to hear from people who have received a GP care management plan in the last 12 months. Does your plan meet your needs? How could it be improved? How do you use your plan? How and why you have used your Plan? If you have not used your Plan, why not? How well has your plan met your health needs? CHF is keen to discuss...Read more
  • Health Consumers Alliance SA's picture

    Embedding consumer-centred care at the new RAH

    The new Royal Adelaide Hospital (nRAH) is a major initiative in South Australia and has significant implications for health consumers. More important than the “bricks and mortar” is the potential that the design of the new hospital has for driving cultural change and specifically for achieving consumer centred care. The nRAH is a key part of SA’s Health Care Plan and aims to be recognised nationally and internationally as an example of best practice in: • patient centered care; • access; • integration; • safety and quality; • innovation; and • value for money. This is a unique opportunity to...Read more
  • From Latest News's picture

    “I am a patient – and I need to be heard!”

    15 year old Morgan Gleason is generating a lot of conversation. After contracting meningitis while getting an infusion for an autoimmune condition, she got fed up with how she was being treated in hospital, and shared her point of view in a video. The video and the Forbes article raise some important points about patient centred care. Though Morgan is in the US , the issues she raises about the patient perspective, and about involving the patient in their own care, are universal. What do you think of Morgan’s video? Have you had a similar experience? —————...Read more
  • From Latest News's picture

    Walking Gallery of Healthcare

    Regina Holliday is working to change the US health care system. In 2009 she lost her 39yo husband Fred to metastatic kidney cancer. During his final hospitalisation, Regina asked to see her husband’s medical records, so that she could do online research of his condition and care, and so that they could make informed decisions together. The costs to obtain his records were prohibitive, and the 3 week wait time to receive them meant that they would have come too late to make any real change to his care. With Fred’s encouragement and in response to his loss, Regina became an arts advocate...Read more
  • Health Consumers Queensland's picture

    Innovative, consumer-centred health services and consumer engagement

    Consumer-centred care is care that: * is accessible, safe and responsive to individual consumer needs, preferences, values and beliefs; * ensures the consumer is well-informed and fully involved throughout the process and that our personal choices and circumstances guide the continuity of clinical options and transition arrangements, with coordinated physical care and emotional support respectfully delivered; * should be inclusive of the consumer’s support network of carers and family members (with the consumer’s consent); and * involves mutually respectful partnerships with clear...Read more
  • BTAA's picture

    Awareness in the community of the impact of brain tumours

    We'd like to hear your views on community awareness of the impact that brain tumours have in our community. In your experience is there an awareness that that every year in Australia about 1600 people are diagnosed with brain cancer and around 1200 die from the disease? In particular what do you think could be done to increase the awareness that brain cancer kills more children than any other cancer?...Read more
  • Jodiesjourneycom's picture

    Success is being a survivor.

    Success is being a survivor. Success means so much - its definition is reflective of the heart & soul of the perceived successor. To myself – Success is not just about chasing a dream and securing it – true success is a lot deeper than pushing through a physical barrier to win the prize on the other side. I believe true success is flying in the face of danger, marching towards the fire and leaning towards the negative perception that your efforts will reap nothing or your existence is unimportant. Success is proving that your hunch was right, your dream was correct and your gamble paid...Read more
  • TUSA1's picture

    Patient Centred Care PCC

    At the time of this email, I am participating as Chairperson of West Moreton Medical Local representative at the National CHF workshop. My question is, Do all the participants of this conference understand what Patient Centred Care is? What makes for good PCC standards? Is there a CHF model of PCC which has been agreed on at Local, Regional, State or National Level? I think that everyone has their own interpretation of what Good PCC looks like. What we need to do collectively as a focus group is bring together the agreed contributing factors and lock away what Great PCC should be. Also, I...Read more
  • shazzie's picture

    health care crisis

    i have had some bad experiences with medical care and mental health care i suffer panic attacks and was house bound for 12 years up until last year i started slowly going out i was told i wasn't bad enough to get home visits, 3 years ago my husband had a lung removed he is on oxygen 24/7 he is only 52 i am his full time carer we have been told he does not fit the criteria of having free home care he got deeply depressed and tried to kill himself the hospital kept sending him home it took 3 years for us and a different hospital for him finally to get help he ended up in the psych ward 3...Read more
  • Anne-Marie's picture

    Health care is a team sport

    I am the chair of a community advisory committee in regional Victoria and recommend the following video as an excellent example of why healthcare professionals should seek the input of their clients in managing their health concerns. http://www.ted.com/talks/eric_dishman_health_care_... . Do you have a story you can share around taking a proactive approach to your healthcare?Read more
  • jenwords's picture

    Parliamentary Inquiry into AHPRA (the Australian Health Practitioner Regulation Agency)

    Have your say on the performance of AHPRA. The Victorian Parliament has launched an inquiry into the performance of the Australian Health Practitioner Regulation Agency (AHPRA). The inquiry is open for submissions until March 1 2013. AHPRA is a national body which is supposed to regulate healthcare professionals, and investigate complaints against them (including complaints to be heard by bodies such as the Medical Boards). This inquiry follows on from a senate inquiry completed in 2012, which focussed on AHPRA's failings in transferring practitioners over to the new national...Read more
  • Delia's picture

    Best Practice Clinical Guidelines

    There are two sets of useful guidelines that could give potential patients a clear idea of 'what should happen' when they undergo medical treatments. One is public hospital policy and procedure manuals which are written by all public hospitals, but kept hidden as 'copy write' and only available under FOI in small sections. The other is Best Practice Clinical Guidelines that are produced by all Western medical and health bureaucracy groups. In Australia they are mostly out of date, or hidden on a confusing range of websites, in the UK they are clearly set on on the NHS...Read more
  • Reps in the Know's picture

    Consumers helping to find solutions in hospitals

    Thank you to a consumer representative at Melbourne Health for arranging to share this presentation by Melbourne Health. It talks about consumers helping to improve hospital services by being involved in 'Root Cause Analysis'. Consumer: I see my role as being really important because we’re outside the organisation but understand the organisation. We don’t see from the organisation perspective but see from the common sense, community perspective. You question judgment, you question processes, and when other people around the table think “that’s just how it is,” for us, no, that’s not...Read more
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