Palliative Care

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Help improve Australian healthcare! By sharing your health experiences and ideas, you can help consumer advocates and consumer organisations work for change that improves things for you, patients, carers, families and communities. 

  • Moderator's picture

    A carer's response to the Statewide (QLD) strategy for end-of-life care 2015

    Before our experience, I believed that Palliative Care was a positive thing and that it would be helpful. But having had contact with a QLD public health service, which did nothing except greatly increase stress and provide very poor quality, inexperienced doctors, I now see it as something that just provides third rate care to very vulnerable people and aims to save money by reducing overall hospital costs. I have had a look at the end of life strategy, I think it's out of balance with too much focus being placed on "identifying people AS Soon as Possible" who may benefit from...Read more
  • Lucas's picture

    Infographic on National Palliative Care 2015: Why You Should Care

    When was the last time you talked about your death and your family’s future? If you can’t remember or haven’t talked about it at all, this is the week to discuss it. National Palliative Care Week 2015 runs across Australia from May 24-30 with the theme is “Dying to Talk: Talking About Dying Won’t Kill You”. Palliative Care Australia says it aims to encourage Australians to be more comfortable discussing their wishes and needs as they near the end of their lives. Here are some reasons why you should care about palliative care (an infographic on these reasons is at www.inspireeducation.net.au/...Read more
  • Patient Opinion's picture

    Wonderful care of palliative patients from health assistant at Maroondah Hospital

    Today I observed excellent care of not one but two palliative patients on our ward, in care given from our health assistant in nursing. This health assistant could not do enough to ensure the comfort, dignity and general well being of the patients and their families during this very hard time. Because of this care these patients died with the utmost dignity, in the best way possible. They were perfectly groomed, supported and comforted. This staff member gives 110% everyday and her efforts are noticed, usually by those who cannot give feedback, so I write on their behalf what a privilege it...Read more
  • Patient Opinion's picture

    Is Intergenerational Palliative Care working to save money at the expense of patients?

    My story is about Palliative Care on the south side of Brisbane. My family member was referred by PA Hospital to a Palliative Care Service run by St Vincent's hospital without knowledge or consent. Something that I did not think would happen in the 21th century. This happened while an outpatient and not yet at a stage where they wished to consider in home Palliative Care. Then I learnt about Palliative Care in Brisbane. I believe it is used as a mechanism to try and reduce public hospital costs by referring people to early palliative care as quickly as possible and encouraging them not...Read more
  • My Story's picture

    Discount Disposals

    This post has come from a consumer from QLD who wished to remain anonymous. ____________________________________________ In my experience, Palliative Care doctors hoover around hospital corridors like a pack of vultures ready to swoop on misfortune. It seems like their job is to reduce the burden of cost. “Mr Hope you’ll have to change your name. The health system can’t afford hope. Doctor Know-it-all has met with his infallible team and they have concluded that your cancer will almost certainly return. No use wasting time, the sooner we organise a smooth exit the better, and the...Read more
  • Patient Opinion's picture

    End of life experience at Sir Charles Gairdner Hospital

    My mother was dying. Very slowly, it was taking a long time. She was under the care of the oncology department at SCGH, which she attended monthly. She was taking chemo tablets and had some issues with side effects. Her initial diagnosis was breast cancer, but after mastectomies, a hysterectomy, having her lymph nodes removed and being diagnosed with end of life bone cancer, she was just about finished. I feel she did not want to be alive anymore because she felt her care provider was terrible - they had revolving casual staff who often spoke hardly any English. We wanted to respect her...Read more
  • Pall care study's picture

    Palliative Care for people with intellectual disability

    Hi Everyone, I work for the uni of New England and we are looking into end of life care for people with intellectual disabilities. We are currently recruiting for a study that looks the end of life experience of people with intellectual disability from the perspective of workers and family members who have experienced the process with them through to death. There are many cases where people with intellectual disabilities and service providers may not have choice or control around the circumstances of end of life and other cases where there has been a really positive experience. So if you have...Read more
  • Patient Opinion's picture

    Hurt and disappointed by care my husband received at hospice.

    My husband was a patient at Caritas Christi Hospice, Kew early 2014. On more than one occasion, during a very hot spell of weather, he was apparently left with no water within his reach. He was very weak and near the end of his life and was unable to reach forward or even pick up a glass. Many of his visitors would discover him in what seemed to be a very distressed state with a tray apparently well out of reach and it seemed no-one had taken the time to offer a straw to his mouth so he could take a little drink of water. If someone had just come up to him and said 'just have a sip...Read more
  • lindapascoe's picture

    My husband's death

    I only wanted to say that the staff that cared for my husband in the last few weeks of his life were of stellar stuff. They put everything into the care and consideration of his feelings, his emotions, and his needs. I give whole appraisal for these people and their work in an extremely difficult situation.Read more
  • Palliative Care Australia's picture

    Is access to palliative care a lottery?

    Palliative care should be available to all Australians – when and where they need it. However, the unfortunate reality is that access to palliative care services in this country is nothing short of a lottery, determined by where you live, your diagnosis, age, cultural background and the education of your health professional. We know that the majority of people would prefer to be cared for, and to die, in their own homes but the reality is that most people die in hospital. For this to change, we need to have the services and workforce available to support people, their families and carers to...Read more
  • Palliative Care Australia's picture

    How can we better support carers?

    Did you know that there are nearly 2.7 million unpaid carers in Australia? That’s about 1 in 9, or 12% of the population. This number includes carers who are looking after dying family members or friends. Palliative care is about supporting families and carers, not just the person who is dying. It is vitally important that we recognise carer needs and adequately support them with, for example, respite care and bereavement support. Are you, or have you been, a carer for someone who is dying? Tell us about your experiences and your ideas about how we can better support carers looking after...Read more
  • Palliative Care Australia's picture

    Why don’t we like talking about death and dying?

    Fact: Australians aren’t comfortable talking about death and dying. But why? It is something that we will all face at some point in our lives. When people don’t discuss or plan for the end of their life, it is difficult to provide care for that person according to their wishes, particularly in the event that they lose capacity to make their own decisions. Family members are also often left feeling anxious and stressed at an already difficult time. People aren’t aware of what palliative care services are available, nor how they can support families. Palliative Care Australia believes every...Read more
  • Palliative Care Australia's picture

    Making plans for your future healthcare

    The majority of people in Australia die expected deaths, that is, after a period of illness rather than a sudden event or accident. We also know that the majority of people do not discuss or plan for the type of care they would want to receive during their illness, particularly at the end of life. This can be problematic in situations where you may be unable to communicate or make healthcare decisions for yourself and your doctor or family aren’t aware of what your wishes may be. Advance care planning is a process which can help you plan your care in advance so if you become too unwell to...Read more
  • Patient Opinion's picture

    Queensland Hospital (Hervey Bay) followed Advanced Health Directive ...with great care

    My 80 year old father had a cardiac condition (AF) and experienced a cardiac episode following a game of golf. His heart could not effectively pump and this compromised his breathing. He also had other co-morbidities that were starting to infringe on his quality of life. The Hervey Bay medical staff honoured his request not to intubate him but provided the maximum treatment to ensure he had every chance to recover - but it was not to be. The following morning he was allowed to die with dignity, in a comfortable bed with his family and loved ones around. This is exactly as he had asked - no...Read more
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